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Become a Member

The North American SCI Consortium provides three levels of membership; Principal, Patron and Partner. Please review the details of each membership level to determine which level best suits you and/or your organization before applying.

Membership is free!   Complete an Application Here

La Membresia es Gratis – Complete una Solicitiud Aqui

Types of Memberships

Principal Member

A consumer-based organization may be a member of NASCIC. The organization must be a registered 501c3(USA), Registered Charity not-for-profit organization or the equivalent in its jurisdiction that directly serves, represents, or advocates for the SCI community whether national, regional, or local. In the event that a participating organization represents the disability community in general, participating NASCIC members must have some direct interaction or related focus on the SCI community

Principal members have an obligation to inform their organization’s members about NASCIC. This membership category has a limit of one voting delegate representative and this vote must be representative of the organization’s membership. 

“It is important personally and as part of United Spinal to be a part of the ‘disruption’ and re-channeling of SCI research to include the consumer voice up-front, not only as an afterthought.” 

– Bill Fertig  

Director, United Spinal Association Resource Center

Join the Consortium in unifying the SCI community to cooperatively leverage resources and facilitate change to improve the lives of people living with SCI.

  • Promote an exchange of information, experience, and networking across the spinal cord injury community and help each other navigate resources.
  • Contribute to strengthening the voice of people living with spinal cord injury in North America.
  • Drive change by sharing your lived experience with researchers, healthcare professionals, and policy makers – you are an expert.
  • Participate in innovative projects to move research results into care to impact the lives of persons with SCI.
  • Participate in supporting efforts in shaping policy that responds to the needs of our community.
  • Principal Members may have one vote, which should be representative of their organizations’ membership.
  • Each Principal Member has the right to send a maximum of one voting delegate to the annual meeting of NASCIC members. Additional non-voting members may attend the annual meeting. 

Patron Member

Any individual living with a spinal cord injury or directly representing a person living with a spinal cord injury, such as a caregiver or family member, with a main objective of representing themselves and not an organization

This membership category has a limit of one voting delegate representative. 

“As someone who has survived three spinal cord injuries and one of 5.4 million individuals and wounded service members living with paralysis in the US, it is important for me to be a part of the NASCIC community.” 

– Claudia Garofalo

New Orleans, Louisiana

Join the Consortium in unifying the SCI community to cooperatively leverage resources and facilitate change to improve the lives of people living with SCI.

  • Promote an exchange of information, experience, and networking across the spinal cord injury community and help each other navigate resources.
  • Contribute to strengthening the voice of people living with spinal cord injury in North America.
  • Drive change by sharing your lived experience with researchers, healthcare professionals, and policy makers – you are an expert.
  • Participate in innovative projects to move research results into care to impact the lives of persons with SCI.
  • Participate in supporting efforts in shaping policy that responds to the needs of our community.
  • Patron Members  may have one vote, which is self-representing.
  • Each Patron Member has the right to attend the annual meeting of NASCIC members. Additional non-voting members may attend the annual meeting.

Partner Member

Any organization or individual with an interest or activities related to people living with SCI but do not meet the Principal or Patron membership categories. Examples may be clinical care facilities, professional associations, funding agencies, for profit entities, government agencies, research institutions, etc.

This membership category can advise Principal and Patron members and participate in meetings and discussions, but does not have a voting delegate representative. 

“It is important to Partner Members to have the opportunity to hear first-hand the discussions and business at hand for the community of individuals with SCI within their framework, in an environment in which they lead, and in which we can contribute as appropriate.  As a Partner Member, we are enthusiastic about actively listening and understanding the community’s goals and priorities and working with them to address both their goals and ours.”

– Dennis Bourbeau, PhD  

Case Western Reserve University, Louis Stokes VA

Engage with the SCI community to enhance effective partnerships between research, healthcare, and industry.

  • Engage and connect directly with the spinal cord injury community.
  • Learn about the priorities, needs and opportunities of people living with spinal cord injury and the organizations that represent them in North America.
  • Gain access to people with lived experience and their family members as a critical component of the (patient) engagement movement.
  • Ability to present/co-design projects with NASCIC.
  • Earn exposure, recognition, and acknowledgement from the community living with SCI.
  • Partner Members may not vote, however they are strongly encouraged to share their opinion on all topics with the voting NASCIC membership.
  • Each Partner Member has the right to attend the annual meeting of NASCIC members.

“It is important to Partner Members to have the opportunity to hear first-hand the discussions and business at hand for the community of individuals with SCI within their framework, in an environment in which they lead, and in which we can contribute as appropriate. As a Partner Member, we are enthusiastic about actively listening and understanding the community’s goals and priorities and working with them to address both their goals and ours.” – Dennis Bourbeau, PhD – Case Western Reserve University, Louis Stokes VA